Swiss Lymph Kids

Swiss Lymph Kids Camp

The meeting day

The Swiss Lymph Kids Day is a day specially designed for children living with lymphedema or a vascular malformation, as well as for their brothers, sisters and parents.

Inspired by the spirit of the Swiss Lymph Kids Camp, this day offers a friendly moment to meet, exchange and move together, in a caring environment adapted to all.

On the agenda

Welcome and aperitif/snack at noon
Group games and movement activities
Large-scale treasure hunt in teams (children and parents)
Fun and cooperative challenges
Time for families to exchange ideas
Barbecue / Canadian meal in the late afternoon

For whom?

Children and adolescents affected by lymphedema or vascular malformation
Siblings
Parents and relatives

Objectives of the day

To allow children to meet other young people living the same reality
Promote movement in a fun and appropriate way
Creating connections between families
To offer a positive, inclusive and supportive moment

Practical information

Schedule: Meeting at 11:00 AM
Meeting place: KVM clubhouse, Chemin Fin du Mossard in Morat (next to Lidl)
What to bring: swimsuit (weather permitting), barbecue/potluck lunch for the late afternoon, and good cheer

The Camp

We are delighted to present the new event by LymphoSuisse for pediatric patients. Families from French-speaking Switzerland, Ticino, and German-speaking Switzerland are invited to participate in an extraordinary camp focused on lymphedema.

The aim of this first edition is to gather and connect in an inclusive and supportive environment where each participant feels encouraged in managing their condition. A team of healthcare professionals will help you better understand the disease and provide insights into its impact on the entire family, both during the camp and beyond.

The Reka Holiday Village in Montfaucon, in the rural Jura region, offers a natural and peaceful setting for a 4-day camp. Each family will have private accommodations and access to the camp's programs and facilities.

This inaugural Swiss edition draws inspiration from the “International Children's Camp” organized every five years by the University Hospital of Montpellier, which has been highly successful. The outcomes of such camps are evident in the following areas:

For Patients:

- Understanding the disease

- Improved disease management and access to treatment

- Strengthened self-management skills

- Exchange of tips and tricks among families

- Combating isolation

- Building a supportive community

For Professionals:

- Promoting research and proximity to patients

- Raising awareness about lymphedema

- Improving access to treatment and understanding patient needs

- Contributing to better management of lymphatic diseases

Practical Information

Location and Date

The camp will take place from Friday, June 6 to Monday, June 9, 2025 (Pentecost weekend) at the Reka Holiday Village in Montfaucon, Canton Jura. You will stay in your own bungalow (various sizes available) and enjoy access to the holiday village facilities, including an indoor pool, wellness area, gym, playground, picnic area, and more.

Reka Holiday Village

Chemin des Tilleuls 149

2362 Montfaucon

www.reka.ch

Costs

A flat fee of 200 CHF per family is required, regardless of the number of family members. This symbolic amount ensures that all families, regardless of financial circumstances, can attend the camp. (Registration fees should not be a barrier; LymphoSuisse is available to provide solutions.)

Costs for accommodation, evening meals, brunch, and activities will be covered for all participants (patients and families).

Breakfast and lunch must be arranged by participants. Each bungalow has a kitchen, and food baskets will be offered for convenience.

By registering for the camp, you automatically become a member of LymphoSuisse (free of charge).

Who Can Participate?

All young individuals aged 4 to 18 years with primary lymphedema from French-speaking Switzerland, Ticino, and German-speaking Switzerland are invited, along with their parents (or guardians) and siblings, subject to availability.

How to Register?

Complete the following online registration form:

Registration Deadline: February 28, 2025.

Registrations will be confirmed after the deadline. The organizers will review applications and select families based on the following criteria:

Type of lymphedema
Representation from each canton
Order of registration

The camp is limited to 10-12 families. However, if demand is high and funding allows, this limit may be increased.

Program

This is a preliminary program subject to change. We guarantee time for meetings, therapy sessions, exchanges with healthcare teams, discussion groups, and excursions.

Friday, June 6,.2025

From 5:00 PM
- Welcome
6:30 PM
- Aperitif and get-to-know-you entertainment
- Workshop: Lymphedema: understanding it better, what's new?

Saturday, June 7, 2025

Individual breakfast
9:15 – 10:00 AM
- Physiotherapy session in the pool or gym
9:15 – 10:00 AM
- Entertainment program for siblings
10:30 AM – 12:00 PM
- Orthoconcept workshop:
  - Workshop: Lymphatic drainage
  - Workshop: Bandaging
  - Workshop: Appropriate footwear
  - Custom measurements and personal advice
10:30 AM - 12:00 PM
- Entertainment program for siblings
12:00 – 13:30 PM
- Meal and free time
From 13:30 PM
- Equine therapy/farm visit/horse grooming
16:30 - 18:30 PM
- Meet Bionicman, a superhero
From 7:00 PM
- Dinner and entertainment: Superhero adventure

Sunday, June 8, 2025

Individual breakfast
9:15 – 10:00 AM
- Physiotherapy session in the pool or gym
9:15 – 10:00 AM
- Entertainment program for siblings
10:30 AM - 12:00 PM
- Vidyortho workshop:
  - Custom measurements and personal advice
  - Compression tools
  - Aids for donning stockings
12:30 PM
- BBQ and games in the Rekavillage
From 2:30 PM
- Workshops in the Rekavillage:
  - Parent, child, and sibling discussion groups;
  - Yoga/Qi Gong
  - free time
From 7:00 PM
- Dinner and costume party: “Superheroes” theme with DJ

Monday, June 9, 2025

Individual breakfast
9:15 – 10:00 AM
- Physiotherapy session in the pool or gym
9:15 – 10:00 AM
- Entertainment program for siblings
10:30 AM - 2:00 PM
- Health brunch: Anti-inflammatory nutrition for all LymphoSuisse members